Wednesday Night update

It's been a very long day. Emily's nurse was able to stay with us during the entire day and I felt ever so fortunate to have her here with me.



After we checked into the emergency department I noticed that Emily had some blood in her feeding tube. In the morning while getting her ready to leave we saw that her tummy was very distended so we stopped the feeding not knowing what the problem was. Good thing we did. She has been bleeding in her tummy somewhere. So when I saw the blood in the tube we opened it up to let it drain.



About 6 ounces of dark stuff looking like coffee grounds and general yuck flowed out. The nurse tested it and it was positive for blood. So, instead of being admitted for lung issues she is really in for the GI bleed. And of course since the tube was open and draining we couldn't give medication through it. So poor girl didn't get any seizure meds (or any other meds) in the middle of the day. Its after10pm now and she just got her meds about 45 minutes ago. Since she didn't get her medicines she had 3 separate seizure episodes, the last being the most lengthy at 33 minutes. The valium has kicked in and Emily is resting now.

The plan for tomorrow is to let her tummy rest, feeding her by IV, and of course giving breathing treatments. Emily did have a CT scan today and it showed the kidney stone, but the bowels were distended with no problems noted. So, she'll just have to rest up and stop bleeding. Once her tummy has rested a bit the floor doctor thinks that the GI will likly scope her to see where the bleed came from. So going into a holiday weekend I'm not sure what that means for us, stay in the hospital till a scope can be done, or do it on outpatient and leave here soon. I just don't know.

Thank you SO much for all your prayers. Your emails have touched my heart, I really appreciate it. I'll write more tomorrow.