The End of Week 1

Ok, here we are, still in the hospital (the one with the prison yard view). Since we’ve been here the doctor has re-started Emily’s feeds, which didn’t go well. She changed her back to a formula that Emily was on a few months ago. Seems to be working better, no bloating or extra gas. Pain continued.

Yesterday the g-j tube was pulled and the normal g-tube was put back in place. Tube site that was gross and crusty looks tons better this morning. Feeding still going okay. Pain still visible.

This is what pain looks like when there are no tears.

Last night Emily had a seizure lasting 25 minutes, normal for her. She was given a dose of Valium for the seizure. This was such a blessing in disguise as it helped her to sleep, even through another IV insertion. She slept until 3am. So I was able to sleep some also. I did get up at midnight, but 2 hours plus 3 hours equals more sleep than I’ve had in the previous 3 days.

This morning the pain has started again. There is only an Rx for Tylenol, which is just taking the very edge off the pain. I asked for a heat pack which I put on Emily’s tummy. This helped somewhat but then she wanted it removed.

Although I’ve asked the doctor for several days to figure out the pain, today is the day. Something HAS to be done. I don’t know if it will be a lower GI, or more x-rays, or what, but they NEED to figure out what is causing the pain.

I talked with Grace on the phone yesterday because she can’t come visit every day. She misses me terribly but is so proud of the bike riding skills she has acquired in the last couple of weeks. She even said, “Mom, I can talk to you on this cell phone while I ride my bike!” Of course I replied with the usual, “You’re doing what???”

I want to thank each and every one of you for your kind notes and your support in prayer! A number of friends have called, and stopped by to visit bringing food and snacks, flowers and balloons. The Lord has used you to lift my spirits and put energy back into my life. There is a new song in my heart today as I write this. Thank you from the bottom of my heart.