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I asked for the feeding pump to be set to a slower speed tonight to see if that might help. At first she writhed around so much that her fists opened up the connection of her urine catheter twice! UGGG.....and of course the nurses are busy until about 10 minutes after I call for them. By that time I've changed her gown and her briefs, rolled her over and put new quilted pads under her, and just gotten her straightened back in her bed when a nurse arrives. And then I'm chided for doing it all myself. But I just can't see letting her sit in the urine (and last time the drainage from the g-tube that happened to spill out).
On a happy note, Emily sat in her chair and we looked at blogs together. At one blog she thought she knew the children from the pictures and was SO excited to see them! We laughed about that.
I sat around today thinking (because I have a lot of time to do that) and I made a mental note that I need to purchase some pajamma pants for the next time I'm in the hospital with Emily. They sure would come in handy in the evenings when I have to get out of bed to do something for her. I don't feel I can dress for bed because I don't know when I'll get up and who will be in the room with me.
Emily is in a Stryker bed. Oh it is so wonderful! I'll post more about it in another post.
Prayer requests from here:
1. Emily needs to tolerate her tube feeding.
2. Emily needs to hold and gain weight. She has lost about 12 lbs during this time.
3. Emily is on a new med (old med) that can cause a movement disorder. She already has a movement disorder so pray that it doesn't affect her in that way.
4. Remember Jeff, Grace, and Jered in prayer. I'm missed at home.
5. Pray for the doctor to have wisdom in handling Emily's feeding intolerance.
6. And pray for me to hold up.
Thanks
5 comments:
You are heavy on our hearts and in our prayers.
Much love to you!
so sorry you are still hanging out at Club Med! we'll be praying Emily's tummy feels better soon, so that she can tolerate her feeds properly.
praying for you, too. try to rest as much as you can, even in the daytime. people will understand if you need to curl up to nap for awhile. everybody knows you get NO good sleep in the hospital.
on the sleep pants - i totally understand what you mean. my final solution was to take the softest shirt and pants i had brought with me, and made those my sleep clothes. that way, i felt somewhat dressed while changing bedclothes and gowns in the middle of the night with Isaac.
: )
Alesha
You are all in our prayers, not only Emily but all the family. God loves you and will watch over you.
Very much in my thoughts. Lori. xx
I will definitely pray for all of you. I'm so sorry this is taking so long to sort out - our 48 hour stay was long enough so you have all our sympathy and more.
I do love your weaving in the next post up - absolutely beautiful. I am thinking the loom is probably too big to take to the hospital though!
Tia
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