It was sunny when we went to clinic. Made it a little difficult to smile for the picture.
Pre-op clinic says everything is a go for Emily’s hip surgery in a week. Emily was none too happy to be there though. But earlier in the week, when her hip was hurting her pretty bad, she smiled when I told her that she was going to have a surgery so the ortho doc could fix her hip.
Emily got a new feeding pump this week.
It is called a Joey and can give water intermittently while delivering formula to her. Thus the two bags.
Both bags merge into one line inside the pump.
I’m hoping we can keep her bladder infections and kidney stones at bay by adding more water. And of course it will be easier to do that with this new pump. The pump was easy to learn to program and the battery stayed charged while we were out at clinic appointments yesterday. That’s a plus!
And what keeps Grace busy while we are in clinic with Emily?
And then she was back to asking, “Is it time to go yet?”




2 comments:
HI Michelle,
So Emily has problems w/ infections, too? Does she take prov. antibiotics? Faith had a series of them and she had to have a VCUG done, they dxed her with grade 2 kidney reflux and put her on Bactrim. That is such a painful thing to suffer w/, I know I have them too. I certainly hope that her surgery will alleviate her pain. XOXOXO
That looks like a great pump, must simplify things not having to keep swapping and changing. I really hope it helps with all her bladder issues.
Tia
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