Friday, August 21, 2009

Taking Hold of Hope

Psalms 43:5
Why are you cast down, O my soul? And why are you disquieted within me? Hope in God; For I shall yet praise him, Who is the help of my countenance, and my God.

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This week has been a bit of a rollercoaster for me emotionally. As the start of school is close at hand my heart begins to feel heavy. I’m not sad that the girls will go to school, but every year at this time my heart aches for the life that Emily will not have.

This year with Emily entering high school the ache has become enormous. The gap is so wide between her development and that of her peers. And there is just no way to close it. I think of the future and her lack of communication and I am nearly overwhelmed. It should be so easy, with technology available, to put a computer in her hands and help her to use it. It should be, but it isn’t.

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I’ve tried for years to open the doors to communication for her. And yet nothing has grown in the spots we’ve planted seeds. So what does this year hold for her? Hope.

Its a new year, a new school, and she is at a new age. So again, I have hope that this year something will occur, a new person in her life, a new technology, a new therapy to help her communicate. And my hope is renewed.

One time I had a dream that Emily was calling me. When I went into her room she was jumping on her bed and laughing. This is my favorite dream I’ve had about her.

While she isn’t able to jump on her bed today I know that someday God is going to give her a new body, one that will never break down. And she’ll be able to talk and sing. And with absolutely clear communication I’m pretty sure she’ll say, “Thanks for having hope Mom, I couldn’t have made it without you.”

Thanks for listening ~

5 comments:

Candace said...

Michelle,
My heart is breaking for you... b/c I know those things deep in your heart that only a mother knows/craves/desires/yearns for. I know that it seems like seeds have not grown but I bet you money, that they have in small places, that maybe you can't see now. She knows how much you love her in her own way. She knows.

Luke's Mom said...

I'm sorry to hear that you are having a hard time right now. I can totally relate to those feelings of wanting my child to be anywhere close to someone his age. It just about broke my heart this week as I went shopping for the kids school books and supplies. I so want to buy him anything at all for school and yet he just not there. I'm praying for you my friend that God will reach down and comfort you right now.

Love in Christ,
Suzi

Linda said...

Michelle, I am sorry dear one,...I am sure that your heart hurts for your Emily.

I am glad that she has such a loving mother.

The Lord knows your heart and your desires. He loves you,..He loves Emily. Cling tightly to Him, and He will give you peace.

When we face things that we can't change it is so hard,..like when my grandson was born without a brain and died after 13 days. Or when another one died after 5 days,...or when my lovely little 6 year old granddaughter died of heart problems.

Neither I , nor their parents could change any of that,...and I know it is hard.

But, "in acceptance lieth peace". A very wise friend of mine told me that quote when her husband got cancer.

We have to lean on the Lord when our strength is weak,...and when our hearts are breaking. He is our all in all. ((smile))

I am praying for you.
Linda @ Truthful Tidbits

ANewKindOfPerfect said...

Oh Michelle, I think that the emotions in your writings this time are ones that MANY of us face this time of year. My peanut is going into first grade in two weeks. First grade! She doesn't walk, or talk, or eat, or even pee much. All of these things she is dependant on me and others for. Yet she is such an amazing, inspiring, interactive girl! We, like you, have little communication. No words, no good efforts with communications devices. Just facial impressions and noises to tell us.

It's hard. It's hard to be the mom. It's got to be even harder to be the Emily.

But look how loving she is, and you are, and your whole family is. Emily has what she needs. :)

sarah bess said...

so beautiful.