
Emily has visitors from her school a couple times a week. Here we are doing the Chicken Dance for her, which she totally enjoyed! Oy, what a work-out!
I was reading a post of a fellow blogger who was having troubles with her child’s feeding pump. We’ve had our own feeding pump challenges lately.
We changed to a Kangaroo Joey not too long ago, because of the ability to get free water pumped each hour (through a second bag attached to the pump), along with the formula. But oh boy, we had a terrible time with this pump. It doesn't pump correctly unless you hang the bag just so many inches from the pump, no higher, no lower. Yes, that is part of the instructions. What? You mean I can't hang the bag where the top of the formula is more than 6 inches higher than the pump? If I do it pumps too much formula at once… If lower than the pump it doesn’t pump enough formula. How could the FDA allow such a pump into existence?
After I accepted that fact and only hung the bag so the top of the formula is 6 inches from the pump. It worked for a few weeks, then we started having troubles with the bags.
Occasionally I would get a bag that wouldn't allow formula through the tubing, some sort of blockage. Then I had about 5 or 6 bags in one case with blockages in the tubing. With the last case we had I noticed the part you put into the pump so the formula would pump through, well that part didn't fit correctly on the pump.
Our feeding pump dilemmas finally came to full blown disaster when one day I noticed Emily’s feeding bag was still full, even after the pump had been going for 6 hours. What a surprise! 6 hours, on the clock, 6 hours on the pump which measured 300mls, and I thought she was getting fed. Nope.
I looked at the tubing, took it off of her gastrostomy tube (g-tube), and not one drop of formula was coming out of the pump, even though it was humming right along. It appeared that the tubing had some sort of a clog or blockage even though it had primed correctly. Did the pump beep in error like it should have? Nope. It just pretended to pump, for 6 whole hours! Grrrrrrr
I hope we are the only people this has happened to.
After so many problems and issues with the Kangaroo Joey I decided we should go back to the Kangaroo Pet pump. That is the type we used before the Joey just a month or two before. So I called our medical supply company and asked for a Pet pump again. To my surprise there were NO Pet pumps in stock. And they weren’t going to get any new ones.
I was told that the maker is no longer producing the Pet pump, and all the medical supply company can get is the Joey. Oh great…..
I searched Emily’s room and found our very old antique Pet Pump (so old that Jered used it from ages 8-16, he’s now 26). I had recently, in the last year or two, purchased a new battery for it, just in case we ever needed it. Well, now we need it. I was pretty sure this pump would be our saving grace.
After using the pump for a few days it appears that it isn’t pumping correctly, about 10 mls less per hour than is programmed to pump. I called a friend of mine. She has an old “brick”, the Kangaroo 324. Tried and true, it still works. It’s not really portable, but it does work.
We still need a newer pump, and I prefer the Kangaroo Pet, but until one is turned in to our medical supply company, we have two old and older pumps to use. I thought about the special needs child support list I am a part of online, and posted a want ad there. I did get a reply and a lady said we could have her pump. I’m hoping and praying it is on its way. In the meantime we’re watching the pumps carefully to make sure Emily is getting fed correctly.
Thanks for listening~