The Tender Scribe

That is so wonderful, I'm so excited that she ...

2012-01-07T02:31:24.986-08:00

That is so wonderful, I'm so excited that she can use this great communication tool. I wonder if Luke could use something like that, I should see if I can get one for him to try out.

Thanks Michelle for your encouraging comments on Luke's blog, sorry I'm not more faithful about commenting, though I always am checking up for new posts.

Sue

My 12 years old (also called Emily) has facial red...

2012-01-01T16:36:52.332-08:00

My 12 years old (also called Emily) has facial red spots the day before a seizure. BTW, she suffers seizures at night only, exclusively. Maybe twice or three times a month. However the day before a seizure, she displays rashes on the right hand side of her face. We know then that she will have a seizure that night. It could be heat-related, when it's too warm or something. She used to suffer febrile seizures as well. Good luck.

That is amazing Michelle!

2011-12-12T20:58:07.542-08:00

That is amazing Michelle!

Of course she was totally worn out from "talk...

2011-12-12T12:18:29.656-08:00

Of course she was totally worn out from "talking" and she had to take a nap afterwords!

SO COOL!

2011-12-12T12:04:06.791-08:00

SO COOL!

Please let me know if you have any questions. Emi...

2011-10-31T19:06:30.040-07:00

Please let me know if you have any questions. Emily's is still working good. It's been 8 years I believe since she had it done and it does leak sometimes now, only after she's been sitting in her wheel chair for a while. However she wears briefs (diapers for adults) and we put a 1/2 menstrual pad inside the brief over the stoma and that helps contain if it is really leaky. The leaking isn't enough of a problem though (because she does wear the diapers) to consider any type of revision.
Michelle

My daughter is having this done in Jan...thanks fo...

2011-10-31T18:04:34.828-07:00

My daughter is having this done in Jan...thanks for posting it

She's still doing it 2 years after this post. ...

2011-10-25T06:57:43.407-07:00

She's still doing it 2 years after this post. The rash had changed a bit and started going down her arm. We were almost fooled again in the last couple of months by, "Oh my she has a rash", because it was so distended and had sort of pustules like an allergy rash. But the minute the seizure was over the rash was gone.

Michelle

Yesterday my 15 year old daughter had seizure like...

2011-10-25T06:40:36.408-07:00

Yesterday my 15 year old daughter had seizure like activity and had a bright red rash along her hairline going down her back. It went away shortly after she regained consciousness. This happened while at school. When I got to the ER her rash was gone. She never has had a seizure before. The ER doctor released her without giving us a reason for her episode.

FANTASTIC!!

2011-05-27T19:15:31.306-07:00

FANTASTIC!!

LOVE this picture, you captured such a wonderful s...

2011-04-30T00:25:27.029-07:00

LOVE this picture, you captured such a wonderful smile! I hope and pray that Emily has been doing better, I continue to pray for her.

Sue

That is hysterical!!

2011-04-26T12:39:02.599-07:00

That is hysterical!!

Grace, you are so special!!! Your mind just never ...

2011-04-26T05:35:15.218-07:00

Grace, you are so special!!! Your mind just never stops!!! Love you all and sounds like your Easter was the greatest!!

I’ve received a similar email without the artist’s...

2011-03-10T04:49:45.999-08:00

I’ve received a similar email without the artist’s name. Thank you so much for sharing your search and the name and web address of Jean Keaton. Now I’ll add it to the message and spread it in my country, Brazil. God bless you and your family for the pureness of your heart.

Michelle, that is awesome!

2011-02-15T22:38:40.237-08:00

Michelle, that is awesome!

Hahaha Guess what? My Emily got those for Christm...

2011-02-15T22:36:17.101-08:00

Hahaha Guess what? My Emily got those for Christmas!! :)

Happy birthday Emily!

2011-01-28T08:41:17.971-08:00

Happy birthday Emily!

Happy Birthday!What a princess in that gown!

2011-01-28T07:07:23.835-08:00

Happy Birthday!What a princess in that gown!

Happy Birthday, Emily, I personally think everyone...

2011-01-27T17:21:30.015-08:00

Happy Birthday, Emily, I personally think everyone should have at least 2 birthdays wvery year, without growing any older of course. I glad it was a very special day for a very special Princess.

How exciting! And how beautiful she looks. Just li...

2011-01-27T12:08:46.982-08:00

How exciting! And how beautiful she looks. Just like Princess Sleeping Beauty.

Hello! I found this link when researching the Mitr...

2011-01-23T16:18:22.044-08:00

Hello! I found this link when researching the Mitrofanoff Procedure. I am also a foster parent for a medically fragile child. I am very interested to read your book-Please let me know how I can order a copy! Lily. I would love if you could email me at: blond_vagabond@yahoo.com

Hi, I have an adult son with epilepsy. Lately, ev...

2011-01-23T11:58:04.007-08:00

Hi, I have an adult son with epilepsy. Lately, every time he has a seizure, he breaks out in a rash. I was scouring the internet looking for ansers and found your post.
You are not alone, I too am searching for annsers

yeah emily it would be awsome if she could use tha...

2011-01-16T16:07:38.339-08:00

yeah emily it would be awsome if she could use that to veido chat with people on skype so she could hear them talk and answer them back too! id be willing to be the guiena pig ! and maybe she can do a veido guest post on her moms blog answering questions or telling a story ?

just some ideas

hugs
taylor

I was just coming to say what April said better! ...

2011-01-14T00:37:09.690-08:00

I was just coming to say what April said better!

I see no cobwebs, no mould, no rubbish. Maybe she'd like to Tidy her corner instead?

Well. . . I think technically Grace is correct. It...

2011-01-13T15:29:23.931-08:00

Well. . . I think technically Grace is correct. It does look clean, as opposed to the area being dirty. Maybe you should ask her to "unclutter" or "straighten" her corner up? She strikes me as someone that can have a very technical mind at times. LoL